Die Fragebögen Disabkids und Kidscreen – Vergleich der
Änderungssensitivität bei der Erfassung gesundheitsbezogener
Lebensqualität von Kindern und Jugendlichen
Subtitle: The Disabkids and
Kidscreen questionnaires – comparison of sensitivity to change in
assessing children's and adolescents' health related
quality of life
Affiliations: Abteilung Qualitätsmanagement und Sozialmedizin,
Universitätsklinikum Freiburg | Fachklinik Gaißach, Zentrum für chronische
Erkrankungen, Gaißach | Rehabilitationskinderklinik der Fachkliniken
Wangen,Wangen im Allgäu | Fachklinik Sylt für Kinder und Jugendliche,
Westerland/Sylt
Abstract: Objectives: The instruments Disabkids and Kidscreen are
intercultural developed questionnaires assessing health related quality of life
of children and adolescents. While the questionnaire Disabkids has been
designed for children and adolescents suffering from a chronic disease, the
questionnaire Kidscreen can be applied for diseased as well as healthy
children. In this study, the sensitivity to change of both instruments is
compared, in the context of inpatient rehabilitation for children with chronic
diseases. Methods: In three medical inpatient rehabilitation treatment centres
for children and adolescents n = 109 patients completed the questionnaires
Disabkids (27 item chronic generic module) and Kidscreen (27 item version) at
the measuring points "beginning of rehabilitation"
(t0) and "3 weeks after beginning of rehabilitation"
(t1). The collected data was analysed and compared by using a t-test for
independent samples and by measuring effect sizes. Results: The questionnaire
Disabkids recorded a significant increase in quality of life in 4 out of 6
scales. Thus, evidence for effect sizes between 0.20 and 0.40 could be shown
for most of the scales. In Kidscreen, however, merely the scale
"physical well-being" shows a significant improvement
of quality of life. In general, variations in the questionnaire Kidscreen
turned out with smaller effect sizes (0.00–0.68), but still the
strongest effect of the two questionnaires can be found in the Kidscreen scale "physical wellbeing". Conclusion: Within the presented
study, improvements in quality of life of diseased children and adolescents
during inpatient rehabilitation were captured through a high number of scales
by the questionnaire Disabkids whereas the questionnaire Kidscreen could only
reflect change on one scale. These results seem coherent with the differences
in the conceptual orientations of both instruments.
Keywords: Sensitivity to change, health related quality of life, children and adolescents, chronic illness
