Abstract: The impact of the diagnosis of and limitations imposed by Usher syndrome, type 1, on adolescents is significant A review of early, middle, and late adolescence is given and then applied to teens who are ‘just deaf. This is extended by describing the impact of Usher on socialization, education, communication, and interaction for the teenager himself/herself; the educational system, and the family. All spheres of life are profoundly affected. There are suggestions about educational modifications, environmental modifications, communication adaptations, and service recommendations such as group meetings for teens with Usher and separate groups for families. The article is based on interviews with 45 people with Usher syndrome, type 1, discussing their own adolescent periods.
