Correspondence:
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Correspondence to: Robert Fourie, Speech and Hearing Sciences, College of Medicine and Health, University College Cork, Ireland. E-mail: [email protected].
Abstract: Objective:The aim of the study was to characterize the experiences of parents whose children have been diagnosed with deafness in Ireland. This is relevant for future planning and development of the professions related to audiology. Method:The researchers analyzed 16 letters to the Health Services Executive (HSE) National Audiology Review Group (NARG), which voice the experiences of parents with deaf children. These invited letters are in the public domain and available in Appendix A of the NARG report. Specifically, the researchers analyzed these letters using the psychological phenomenological approach. Main results:Phenomenological analysis highlighted a range of parental experiences in relation to their children’s deafness. Although some parents reported their experiences of being supported, coping, resilience and resourcefulness, most expressed anger, resentment and bitterness towards inefficient diagnostic processes, dissatisfaction with services, and inadequate information and counselling in relation to options and prognosis. In many cases, parents expressed loneliness, uncertainty, and a fear of an unsure future for their child. Conclusion:Parents believed that a great deal of change was necessary to instil confidence and satisfaction in the Irish audiology service.
Keywords: National Audiology Review, Ireland, experiences parenting a deaf child, Irish audiology service, phenomenology