Quality of life in children with traumatic brain injury -- basic issues, assessment, and recommendations

Issue title: Quality of life after multiple trauma

Article type: Research Article

Authors: Ravens-Sieberer, Ulrike | Patrick, Peter D. | the CHI Consensus Group,

Affiliations: Robert Koch-Institute, Seestr. 10, D-13353 Berlin, Germany | Kluge Children's Rehabilitation Center, Children's Medical Center, University of Virginia, USA

Note: [] Corresponding author: Tel.: +49 30 4547 3436; Fax: +49 30 4547 3531; E-mail: [email protected]

Note: [] Members of the CHI Consensus Group: B. Benz (Bremen, Germany), G. Calaminus (Düsseldorf, Germany), H. Flechtner (Cologne, Germany), P. Melchers (Cologne, Germany), P. Patrick (Virginia, USA), U. Ravens-Sieberer (Berlin, Germany), B. Schäfer (Cologne, Germany), L. Suhr (Cologne, Germany), L. Schrod (Würzburg, Germany), B. Ure (Utrecht, The Netherlands), L. Willadino-Braga (Brasilia, Brasil).

Abstract: An international Task Force was convened under the guidance of BMBF Conference so as to review the "State of the art" for measuring quality of life (QoL) in children who have suffered traumatic brain injury (TBI). After expert review of instruments and evaluation of two independent literature reviews this work group established "inclusion criteria" for the review of current tools that could contribute to the measurement of QoL in children with TBI. Six instruments were determined to meet all or most of the criteria required to be used in current clinical practice and research for children with TBI.

Keywords: children, quality of life, traumatic brain injury, consensus conference

Journal: Restorative Neurology and Neuroscience, vol. 20, no. 3-4, pp. 151-159, 2002