Affiliations: [a] Department of Physical Medicine and Rehabilitation, Research and Training Center in Rehabilitation and Childhood Trauma, New England Medical Center, Tufts University School of Medicine, Boston, MA, USA | [b] Health and Rehabilitative Services, The May Institute, Randolph, MA, USA | [c] Shriners Burns Institute, Boston, MA, USA
Note: [1] This research is supported by Award H133B00344 from the National Institute on Disability and Rehabilitation Research, U.S. Department of Education. The authors wish to thank Dr. Marvin Brooke and the members of the Research and Training Center in Rehabilitation and Childhood Trauma for their assistance with this research. Requests for reprints should be addressed to: Marilyn Lash, Research and Training Center in Rehabilitation and Childhood Trauma, New England Medical Center, 750 Washington St., 75K-R, Boston, MA 02111.
Note: [*] Formerly of Research and Training Center in Rehabilitation and Childhood Trauma.
Abstract: This paper summarizes the survey responses of 67 families with children who were hospitalized after traumatic injuries. The survey was conducted during the pre-planning phase of a major research proposal on the rehabilitation of children who had been injured. The purpose of the survey was to involve families in the identification of needs and determination of priorities for research and training in childhood injuries. The first part of the survey focused on direct services that children and their families received through medical, psychosocial, educational and vocational interventions and providers. The second part concerned the immediate and long-term effects of a child's injury upon the family. Families were asked to indicate: (1) the direct care services they considered most important in their child's recovery; (2) areas needing more research and study; (3) training needed by professionals; and (4) information needed by families. Major findings were the importance to families of emergency room treatment and the quality of hospital care; concerns about communication between professionals and parents; the uncertainty of expectations for the future; and lack of information on community resources. Written comments emphasized the emotional impact of physical trauma upon families and the need for longitudinal research, with pediatric rehabilitation viewed as a broad spectrum of care starting with emergency room care and hospitalization and continuing through school and community programs. As a result of this survey several projects were initiated. They include: revision of head sheets distributed by emergency rooms, physician training in communication skills, preparation of families as service coordinators, and development of materials and programs specifically for families.
Keywords: Families, Children, Traumatic injuries, Need for research and training
