Translation and adaptation of the Pediatric Outcome Data Collecting Instrument (PODCI) into the Dutch language and preliminary validation in children with Neonatal Brachial Plexus Palsy

Subtitle:

Article type: Research Article

Authors: Holst, Menno van der^{a; b; *} | Vlieland, Thea P.M. Vliet^{a; b} | van de Sande, Michiel A.J.^a | van Egmond-van Dam, Janneke C.^a | Vermeulen, Henricus M.^a | Nelissen, Rob G.H.H.^a

Affiliations: [a] Department of Orthopaedics and Rehabilitation, Leiden University Medical Center, Leiden, The Netherlands | [b] Rijnlands Rehabilitation Center, Leiden, The Netherlands

Correspondence: [*] Corresponding author: Menno van der Holst, Department of Orthopaedics and Rehabilitation, Leiden University Medical Center, Postal zone H0Q, PO Box 9600, 2300 RC Leiden, The Netherlands. Tel.: +31 71 5263457; Fax: +31 71 5266697; E-mail:[email protected]

Abstract: PURPOSE: This study aimed to translate and cross-culturally adapt the Pediatric Outcome Data Collecting Instrument (PODCI) into the Dutch language and evaluate its measurement properties among children (age 3-10) with Neonatal Brachial Plexus Palsy (NBPP). METHODS: The PODCI was translated and adapted according to international guidelines and administered to 10 children with NBPP before and after surgery and thereafter twice again. Subsequently, the Mallet-score, Assisting Hand Assessment and active Range of Motion (aROM) were recorded. Cronbach's-α and correlations between the PODCI and other outcome measures were determined, as well as Intraclass Correlation Coefficients (ICC). In addition, effect sizes (ES), Standard Response Means (SRM) and change scores with the 95% Confidence Interval (95% CI) were calculated. RESULTS: The final Dutch PODCI `Upper Extremity and Physical Function' subscale and total score `Global Functioning' showed good internal consistency (Cronbach's-α 0.695/0.781) and reliability (ICC 0.97/0.80) and were significantly associated with aROM and the Mallet-score. After surgery a significant change of the total score (ES 0.57, SRM 1.23, change 4.22 points, 95% CI 1.04-7.4) was seen. CONCLUSION: The final Dutch PODCI had good measurement properties and appears useful in evaluating quality of life and functioning in children with NBPP.

Keywords: Brachial plexus neuropathy, treatment outcome, pediatrics, quality of life, physical therapy, joint capsule release, tendon transfer

DOI: 10.3233/PRM-150338

Journal: Journal of Pediatric Rehabilitation Medicine, vol. 8, no. 3, pp. 219-226, 2015