A systematic review of how adherence to caregiver facilitated therapeutic activities for children are assessed and reported in published research

Article type: Systematic Review

Authors: Alonge, Victor O.^{; *} | Kostaki, Angeliki

Affiliations: Physiotherapy Department, LUNEX University, Differdange, Luxembourg

Correspondence: [*] Corresponding author: V.O. Alonge, LUNEX University, 50 Avenue de Parc des Sports. L-4671, Differdange, Luxembourg. Tel.: +352 288 49468; E-mail: [email protected].

Abstract: This systematic review assessed four measurement properties of measures (instruments) used by researchers to assess adherence to caregiver facilitated therapeutic activities (CFTA) for children in published research. The measurement properties considered in this systematic review were dyadic considerations, interpretability, reliability, and validity of the instruments used to assess adherence or compliance. Two databases (http://www.pubmed.gov and EMBASE) were searched for studies that reported adherence or compliance to CFTA prescribed by physiotherapists or occupational therapists or speech and language therapists. Papers included in this review were those that studied children less than 18 years old and or their primary caregivers. Data were extracted by the authors using a data extraction table adapted from the work of Bollen and colleagues (2014) and by rating the measurement properties of the adherence measures identified based on predefined rating criteria (see supplementary file and Table 1 respectively). The authors relied only on the published research articles and any associated published supplementary files/data. None of the 40 adherence instruments identified wholly fulfilled all the criteria of the four measurement properties assessed. The results of this systematic review show that the measures used by researchers for assessing adherence to CFTA generally lack validity, reliability, and dyadic considerations.

Keywords: Adherence, compliance, dyadic considerations, interpretability, reliability, validity

DOI: 10.3233/PRM-210043

Journal: Journal of Pediatric Rehabilitation Medicine, vol. 15, no. 2, pp. 349-358, 2022