Searching for just a few words should be enough to get started. If you need to make more complex queries, use the tips below to guide you.
Article type: Research Article
Authors: Freeman, Kurt A. | Smith, Kathryn | Adams, Elizabeth | Mizokawa, Stacey | Neville-Jan, Ann | and the West Coast Spina Bifida Consortium,
Affiliations: Institute on Development and Disability, Oregon Health and Science University, Portland, OR, USA | University of Southern California Center for Excellence in Developmental Disabilities at Children's Hospital Los Angeles, Los Angeles, CA, USA | University of Southern California, Los Angeles, CA, USA
Note: [] Corresponding author: Kurt A. Freeman, ABPP. Institute on Development and Disability, Oregon Health and Science University. 707 SW Gaines, Portland, OR 97239, USA. Tel.: +1 503 494 0360; Fax: +1 503 494 6868; E-mail: [email protected]
Abstract: PURPOSE: To evaluate the relationship between child- and parent-reported quality of life (QOL) and bowel and bladder continence among young children with spina bifida (SB). METHODS: 104 children ages 5–12 years and one of their parents/guardians completed the Pediatric Quality of Life Inventory – Generic Form (PedsQL; parent and child) and the Quality of Life in Spina Bifida Questionnaire (QOLSBQ, parent only). Data on continence, child age, and condition-specific variables were obtained by chart review. RESULTS: Parent and child QOL scores (on all measures of QOL) were positively correlated; parents rated child QOL lower than children's self report. QOL scores did not differ based on continence status. Total PedsQL scores were associated with age and mobility based on child report and with mobility based on parent report. CONCLUSIONS: QOL may not be affected by continence status among young children with SB, though demographic (i.e., age) and condition-specific (i.e., functional mobility status) variables appear relevant. Additional research is needed to further evaluate condition-specific variables, other protective variables, and possible measurement issues that influence QOL in young children with SB.
Keywords: Spina bifida, continence, quality of life, children
DOI: 10.3233/PRM-140263
Journal: Journal of Pediatric Rehabilitation Medicine, vol. 6, no. 4, pp. 215-223, 2013
IOS Press, Inc.
6751 Tepper Drive
Clifton, VA 20124
USA
Tel: +1 703 830 6300
Fax: +1 703 830 2300
[email protected]
For editorial issues, like the status of your submitted paper or proposals, write to [email protected]
IOS Press
Nieuwe Hemweg 6B
1013 BG Amsterdam
The Netherlands
Tel: +31 20 688 3355
Fax: +31 20 687 0091
[email protected]
For editorial issues, permissions, book requests, submissions and proceedings, contact the Amsterdam office [email protected]
Inspirees International (China Office)
Ciyunsi Beili 207(CapitaLand), Bld 1, 7-901
100025, Beijing
China
Free service line: 400 661 8717
Fax: +86 10 8446 7947
[email protected]
For editorial issues, like the status of your submitted paper or proposals, write to [email protected]
如果您在出版方面需要帮助或有任何建, 件至: [email protected]