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Issue title: Neuromuscular Disease
Article type: Research Article
Authors: Mannlein, Julie | Pangilinan, Percival H.
Affiliations: Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA
Note: [] Address for correspondence: Julie Mannlein, PT, ATP, Physical Therapist Clinical Specialist, University of Michigan, Department of Physical Medicine and Rehabilitation, 2850 S. Industrial suite 200, Ann Arbor, MI 48104, USA. Tel.: +1 734 971 8286; E-mail: [email protected]
Abstract: Duchenne Muscular Dystrophy (DMD) is an X-linked recessive disorder which features progressive muscle wasting and weakness. Despite advances in treatment, the weakness of DMD will eventually necessitate a wheelchair for almost all children. The goal of wheelchair use is to maximize function and mobility while minimizing discomfort and postural abnormalities. Because of the large variation of patient symptoms and functional deficits, no single wheelchair would adequately serve the needs of all children with DMD. Unfortunately, little information to guide selection of equipment for children with DMD is available. This article discusses the decision-making processes regarding appropriate time to provide equipment, the evaluation of DMD clients, and reviews the numerous options in order to help prescribers, caregivers and clients design an appropriate wheelchair system.
Journal: Journal of Pediatric Rehabilitation Medicine, vol. 1, no. 3, pp. 225-235, 2008
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