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Article type: Research Article
Authors: Zakarias, Johanne Købstrupa; * | Jensen-Dahm, Christinaa | Nørgaard, Anea | Roos, Petera | Gasse, Christianeb; c | Phung, Thien Kieu Thia | Waldemar, Gunhilda
Affiliations: [a] Danish Dementia Research Centre, Department of Neurology, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark | [b] National Centre for Register-based Research, Aarhus University, Aarhus, Denmark | [c] Department of Depression and Anxiety/Psychosis Research Unit, Aarhus University Hospital, Department of Psychiatry, Risskov, Denmark
Correspondence: [*] Correspondence to: Johanne Købstrup Zakarias, BSc, Danish Dementia Research Centre, Department of Neurology, Neuroscience Centre, Rigshospitalet, University of Copenhagen, Blegdamsvej 9, #6991, 2100 Copenhagen Ø, Denmark. Tel.: +45 3112 2789; E-mail: [email protected].
Abstract: Background:Early and accurate diagnosis of dementia opens the door to appropriate treatment, support, and counseling. Despite availability of evidence-based guidelines for diagnostic evaluation of dementia, the diagnostic rate in people with dementia is low and the quality of dementia diagnoses is unknown. Objective:The overall aim of this register-based study was to analyze the quality of diagnostic evaluation of dementia by assessing nationwide geographical variations in a range of indicators. Methods:A register-based cross-sectional study of the entire Danish population aged 65 years or older in 2015 was conducted. The surrogate indicators for diagnostic quality included 1) prevalence rates of dementia diagnoses, 2) incidence rates of dementia diagnoses, 3) age at first diagnosis of dementia, 4) medical specialty responsible for diagnosis, 5) diagnostic rate of dementia subtypes, and 6) use of anti-dementia medication. The indicators were compared across the five Danish regions. Results:The national prevalence and incidence of registered dementia diagnoses was 3.0% and 0.5%, respectively. The proportion of patients diagnosed at a dementia specialist department ranged from 60.9% to 90.5% across the five regions, subtype specific diagnosis ranged from 45.3% to 75.5%, and use of anti-dementia medication ranged from 29.2% to 58.3%. Conclusion:The observed geographical variations in dementia diagnoses and treatment indicate inequality in the access to appropriate diagnostic evaluation and care for patients with dementia. Our findings call for more awareness of the benefits of timely diagnosis and for improvement in the quality of diagnostic evaluation of dementia.
Keywords: Dementia, diagnosis, geography, health care quality assessment, register
DOI: 10.3233/JAD-190030
Journal: Journal of Alzheimer's Disease, vol. 69, no. 2, pp. 513-520, 2019
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