Journal of Pediatric Rehabilitation Medicine - Volume 2, issue 2
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The Journal of Pediatric Rehabilitation Medicine (JPRM): An Interdisciplinary Approach Throughout the Lifespan is designed to parallel the multidisciplinary teams caring for children, adolescents and adults with childhood-onset physical disabilities and complex care needs worldwide. Published quarterly, topics include, and are not limited to, cerebral palsy, traumatic brain injury, spinal cord injury, spina bifida, limb deficiency, muscular dystrophy, stroke, cancer, developmental delays, and rare disorders. Furthermore, the journal welcomes papers dedicated to pediatric rehabilitation from a global health perspective.
The aim of JPRM is to engage a diverse group of international experts with the goal of providing readers with comprehensive information regarding children and adolescents requiring rehabilitation. JPRM brings together specialists from medicine, nursing, psychology, social work, nutrition, child life, family centered care, and occupational, physical, and speech therapy. For manuscript submissions, authorship involving at least two different specialties is encouraged, although not required, to facilitate a transdisciplinary and collaborative approach. Manuscripts are blinded and peer reviewed including biostatistical analysis. Authors are invited to submit original research, systematic and scoping reviews, guidelines, protocols, care pathways, case reports, book reviews, commentaries, editorials, and dates for future conferences.
Abstract: Pediatric specialists are faced with many challenges when confronted with young patients diagnosed with acquired or congenital disabilities. In addition to the myriad of presenting medical issues, team members also need to acknowledge and address contributing psychological, social and environmental factors when working with medically involved children. Specifically, the understanding of developmental, cognitive, familial, and emotional considerations is essential for tailoring more successful individual treatment plans. The purpose of this article is…to address the multidimensional aspects associated with the treatment of children presenting with physical or neurological impairments. Specifically, psychological and neuropsychological perspectives will be discussed and case examples will be presented in an effort to propose a comprehensive approach for the promotion of better outcomes in pediatric patient care.
Abstract: Duchenne muscular dystrophy is is the most common form of the childhood muscular dystrophies. It follows a predictable clinical course marked by progressive skeletal muscle weakness, lost of ambulation before teen-age and death in early adulthood secondary to respiratory or cardiac failure. Becker muscular dystrophy is less common and has a milder clinical course but also results in respiratory and cardiac failure. Altough recent advances in respiratory care and new technologies have improved the outlook…many patients already received only a traditional non-interventional approach. The aims of this work are: to analyse the pathophysiology and natural history of respiratory function in these diseases, to descript their clinical manifestations, to present the diagnostics tools and to provide recommendations for an adequated respiratory care in this particular population based on the updated literature referenced.
Abstract: During man-made or natural emergencies, communication is essential. However, for millions of individuals worldwide who have significant communication disabilities, spoken language may not be effective or efficient. As a result, emergencies can quickly turn into life-threatening situations. Alternatives to spoken language or augmentative and alternative communication (AAC) may be necessary to ensure effective and efficient communication. The purpose of this study was to identify needed vocabulary for communication during times of emergency.…In order to identify needed vocabulary, two online focus groups generated and prioritized this vocabulary. Based on the 209 words that were identified, we used 50 priority words to develop downloadable communication aids for use during times of natural or man-made emergencies.
Keywords: Communication, emergencies, communication disabilities, AAC
Abstract: Objective: Children with cerebral palsy (CP) are smaller than normally growing children. The association between the growth hormone (GH) axis and growth in children with CP during puberty is unknown. We compared growth and markers of the GH axis in pre-pubertal and pubertal children with moderate to severe CP and without CP over a three-year period. Study design: Twenty children with CP, ages 6–18, Gross Motor Function Classification System levels III-V, were compared to…a group of sixty-three normally growing children of similar age. Anthropometry, Tanner stage, bone age, and laboratory analyses were performed every six months for three years. Laboratory values included spontaneous overnight GH release, fasting IGF-1 and IGFBP-3. Repeated measures models were used to evaluate interactions among Tanner stage and group (children with CP vs. reference children), taking into account gender, age, and nutritional status. Results: Children with CP grew more slowly than those without CP at all Tanner stages (p< 0.01). Patterns of IGF-1 and GH secretion in children with CP were similar to those of the reference group; however, the concentrations of IGF-1 (p< 0.01) and GH (p< 0.01) were lower in girls with CP, with a similar trend for boys (p=0.10 and 0.14, respectively). Conclusions: Diminished circulating IGF-1 and GH concentrations may explain the differences in growth between the two groups.