Journal of Pediatric Rehabilitation Medicine - Volume 11, issue 2
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The Journal of Pediatric Rehabilitation Medicine (JPRM): An Interdisciplinary Approach is designed to parallel the multidisciplinary teams caring for children, adolescents and adults with childhood-onset physical disabilities and complex care needs worldwide. Published quarterly, topics include, and are not limited to, cerebral palsy, traumatic brain injury, spinal cord injury, spina bifida, limb deficiency, muscular dystrophy, stroke, cancer, developmental delays, and rare disorders. Furthermore, the journal welcomes papers dedicated to pediatric rehabilitation from a global health perspective.
The aim of JPRM is to engage a diverse group of international experts with the goal of providing readers with comprehensive information regarding children and adolescents requiring rehabilitation. JPRM brings together specialists from medicine, nursing, psychology, social work, nutrition, child life, family centered care, and occupational, physical, and speech therapy. For manuscript submissions, authorship involving at least two different specialties is encouraged, although not required, to facilitate a transdisciplinary and collaborative approach. Manuscripts are blinded and peer reviewed including biostatistical analysis. Authors are invited to submit original research, systematic and scoping reviews, guidelines, protocols, care pathways, case reports, book reviews, commentaries, editorials, and dates for future conferences.
Abstract: PURPOSE: The aim of this systematic review was to analyze the results of studies on quantifiable physical risk factors (beyond questionnaires) for adolescent low back pain (LBP). METHODS: A systematic search was conducted in Medline (OvidSP), Premedline (PubMed), EMBASE, Cochrane, CINAHL, PEDro and PsycINFO. Cross-sectional, prospective and retrospective English language studies on LBP in adolescents aged 10 to 18 years were included. Results: Twenty-two mostly cross-sectional studies were included. Trunk muscle endurance in particular seemed to be associated with adolescent LBP, while a possible association of trunk muscle strength and spinal flexibility was…less clear. CONCLUSION: There is a need for prospective studies on quantifiable physical risk factors for adolescent LBP. Such studies should focus on back and abdominal muscle endurance, possibly in combination with sagittal spinal mobility, sagittal postural alignment and neurodynamics as possible modifiable risk factors for LBP.
Keywords: Adolescent, low back pain, physical, risk factor, systematic review
Abstract: PURPOSE: The present study investigated the effects of virtual reality (VR) training using the Xbox Kinect on motor function, balance, gait, and functional mobility in children with cerebral palsy (CP). METHOD: This was a case series. Four children with spastic diplegic cerebral palsy were provided VR training using the Xbox Kinect for 12 sessions (three sessions per week for 4 weeks). At baseline and follow-up, physical function was measured using the following: Selective Motor Control (SMC) for motor function, Pediatric Balance Scale (PBS) for balance, Timed Up and Go (TUG) test and Functional Mobility Scale (FMS)…for functional mobility, and 6-meter walk test (6WT) for gait. RESULTS: As compared with the baseline scores, SMC, PBS, TUG, FMS, and 6MWT scores after training showed improvements. In participant 1, PBS and TUG scores improved after VR training. In participant 2, SMC (left ankle dorsiflexor, left knee extensor), PBS, TUG, and FMS scores improved after training. In participant 3, SMC (left hip flexor), TUG, FMS, and 6MWT scores improved after training. In participant 4, SMC (right ankle dorsiflexor), PBS, TUG, FMS, and 6MWT scores improved after training. CONCLUSION: The results show that VR training using the Xbox Kinect may improve physical functioning in children with spastic diplegic cerebral palsy. However, its utility in the rehabilitation of children with CP requires further investigation.
Keywords: Cerebral palsy, spastic diplegia, virtual reality, Xbox Kinect, motor function
Abstract: PURPOSE: Psychometric data are reported for a new Global Family Quality of Life Scale (G-FQOLS) (3-items) evaluating family members, parents and adolescent/young adults (AYA). METHODS: Families (N = 209) were interviewed in a study addressing secondary conditions and adaptation in families of AYA with and without spina bifida (SB). Principal component factor analysis with Varimax rotation, Cronbach alpha, and Intraclass correlation (ICC) for parent-AYA agreement of FQOL assessment were conducted. RESULTS: A single factor with an eigenvalue greater than 1 was identified. Factor loadings were 0.79–0.94. Internal reliabilities…were strong (α = 0.86–0.90). ICC coefficients between parent and AYA ratings were 0.38–0.48. CONCLUSION: This study provides preliminary support for the G-FQOLS. This global appraisal of Family Quality of Life (FQOL) reflects a participant’s personal weighting of domains important to him/her.
Keywords: Family quality of life, parents, adolescent, spina bifida
Abstract: PURPOSE: To assess the interrater reliability, construct validity and usability of the Eating and Drinking Ability Classification System (EDACS) among Dutch children with Cerebral Palsy (CP) when used by speech and language therapists (SLTs) familiar and unfamiliar with the child’s eating and drinking performance and parents. METHODS: Translation was undertaken using the method of Eremenco. Agreement between SLTs and parents when using EDACS was determined by intraclass correlation coefficient (ICC) and linear weighted Kappa (κ W ). Associations with other functional classification systems including the Dysphagia Management Staging Scale (DMSS) were investigated to…determine construct validity by Kendall’s tau-b. RESULTS: Thirty-one SLTs classified 149 children (67 girls; mean 10 y, SD 4 y, range 3–21 y) with EDACS. Pairs of SLTs showed good agreement ([ICC] = 0.84; 95% confidence interval [CI] 0.79–0.88; [κ W ] = 0.71). Eighty-one parents showed good agreement with SLTs (n = 31) as well (ICC = 0.80; 95% CI 0.71–0.87; κ W = 0.61). There was a significant and strong positive correlation of EDACS with DMSS (Kendall’s tau-b 0.81) supporting its construct validity. Usability of EDACS was generally good. CONCLUSION: The Dutch version of EDACS is reliable and valid, and can be used easily by (familiar and unfamiliar) SLTs and parents of children with CP. Parents and professionals showed a high level of consistency when classifying eating and drinking abilities. EDACS enables uniform and efficient communication about safety and efficiency of functional eating and drinking ability in clinical and research contexts.
Abstract: PURPOSE: The purpose of this study was to understand healthcare providers’ perspective and responsivity to families’ needs in rehabilitative care delivery for children with Acquired Brain Injury (ABI). METHODS: Three focus group sessions were conducted to explore and understand multidisciplinary healthcare professionals’ (Hcps) perspectives about the care they deliver to parents of children with ABI. Convenience sampling was used to recruit healthcare providers (total sample size = 15) from a large rehabiliation centre of an urban setting in western Canada. Data was collected through semi-structured interviews and analysed thematically. RESULTS:…Findings from this study revealed Hcps’ perspectives on their day-to-day delivery of care and furthered our understanding of their challenges. It also increased our awareness about the rewards that Hcp gain as a result of their work. Five main themes emerged: (1) Getting back to normal; (2) Hsps’ roles and perception; (3) Challenges in practices; (4) Practice rewards; (5) a focus on solutions/ideas for better healthcare delivery. CONCLUSION: Hcps’ perspectives on their day-to-day delivery of care to families who have a child with ABI enhance our knowledge about the existing challenges and complexities. Findings from this study have significant implication for rehabilitation services in making rehabilitation goals more achievable for families of children with ABI.
Abstract: BACKGROUND: There is evidence that channelopathies are the cause of many different neurological diseases. The epileptic perinatal encephalopathy due to mutation in the KCNQ2 gene is a rare disease involving severe tetraparesis and cerebral visual impairment. Diseases of this kind are associated with severe disability that involves multiple systems and requires accurate genetic diagnosis and early multidisciplinary care once clinical stability is reached. CASE REPORT: We describe a case of a baby girl with KCNQ2 encephalopathy who came to our observation for rehabilitation at age 2 years and 6 months. CLINICAL REHABILITATION IMPACT:…We stress the importance of a correct clinical, pharmacological and visual diagnosis. Correct diagnosis made it possible to involve the baby girl and her care-giver in an early process of visual rehabilitation lasting 6 months, the effects of which proved to persist at follow-up after more than a year, making it possible to start a useful inter-professional rehabilitation plan.