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Issue title: Reshaping Health Statistics
Article type: Research Article
Authors: Gissler, Mika; | Surcel, Heljä-Marja
Affiliations: THL National Institute for Health and Welfare, Finland | Nordic School of Public Health, Sweden
Note: [] Corresponding author: Mika Gissler, THL National Institute for Health and Welfare, P.O. Box 30, 00271 Helsinki, Finland. Tel.: +358 20 610 7279; Fax: +358 20 610 7459; E-mail: [email protected]
Abstract: The Finnish Health Information System is based on detailed individual level information. All register-based sources include a personal identification number, which can be used for data linkages. In this article, the possibilities and problems in combining biobank information donated by women in early pregnancy and collected by the Finnish Maternity Cohort (FMC) to nationwide health registers are described. The FMC biobank data can be combined to Medical Birth Register (since 1987) and Register on Congenital Malformations (1963) to get additional information on mothers' and their offspring's background, health and care during pregnancy, and birth. Cancer Register (1953), Cause-of-Death Register (1969), Hospital Discharge Register (1969), and Register on Reimbursed Prescribed Medicine (1994) are the most used health registers in studying mothers' and their offspring's subsequent health. Combination of data from Central Population Register (1973) enables family studies on subsequent generations and siblings. The main problems in using biobank material are limited availability of blood sera, the risk of decreased sample quality, the ideal selection of study plans, and the complex process to get permission to use the data and to form it. The use of register data is limited to the existing data with good quality. The archiving and sharing of completed biobank analyses is recommended.
Keywords: Administrative registers, biobank data, health information system, longitudinal studies, register, register-based research
DOI: 10.3233/SJI-2012-0744
Journal: Statistical Journal of the IAOS, vol. 28, no. 1-2, pp. 53-58, 2012
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