Affiliations: [a] Department of Child, Youth and Family Studies, University of Nebraska-Lincoln, Lincoln, NE, USA
| [b] Institute for Rehabilitation Science and Engineering, Madonna Rehabilitation Hospital, Lincoln, NE, USA
| [c] Department of Education, Universidade Federal Rural de Pernambuco, Recife, PE, Brazil
| [d] Department of Psychology, Faculdade Pernambucanade Saúde, Recife, PE, Brazil
Correspondence:
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Corresponding author: Natalie A. Williams, PhD, Translational Research Director of Health Psychology, Institute for Rehabilitation Science and Engineering, Madonna Rehabilitation Hospital, 5401 South St., Lincoln, NE, 68506, USA. Tel.: +1 4024134503; Fax: +1 4024134512; E-mail: [email protected].
Abstract: PURPOSE:Family-centered rehabilitative care optimizes outcomes for children with significant developmental disabilities. Family-centered services involve assessing family resources that promote positive developmental outcomes for children. Little is known regarding family resources in the context of caring for a child with developmental disabilities in Brazil due to an absence of validated measures. This study describes the translation and cultural adaptation of the Family Resource Scale and explored the measurement quality of the resulting measure (the Brazilian-Family Resource Scale, or B-FRS). METHODS:A rigorous serial translation process that emphasized linguistic accuracy as well as cultural adaptation was utilized. The resulting 27-item B-FRS was theoretically related and reflected the contextual intent of the original measure. RESULTS:A four-factor scoring approach yielded acceptable internal consistency estimates for the subscales and total scale score. Overall, low levels of family resources were reported by caregivers of children with Congenital Zika Syndrome. Low family resources were associated with parental depressive and stress-related symptoms. CONCLUSION:Confirmatory factor analysis of the B-FRS in a larger sample is recommended. Practitioners in Brazil should broadly consider family needs and resources to provide family-centered care that is effective for the child and engages the family in a way that highlights their strengths and promotes positive developmental trajectories.
Keywords: Congenital zika syndrome, Brazil, family resources, cross-cultural questionnaire adaptation
