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Issue title: Immigration and Transition: Emerging Trends in Spina Bifida Care
Guest editors: Timothy Brei and Jonathan Porter Castillo
Article type: Research Article
Authors: Johnson, Kianaa; * | Rocque, Brandonb | Hopson, Betsyb | Barnes, Katherineb | Omoike, Ogbebor Enaholoc | Wood, Davida
Affiliations: [a] Department of Pediatrics, Quillen College of Medicine, East Tennessee State University, Johnson City, TN, USA | [b] Department of Surgery, University of Alabama, Birmingham, AL, USA | [c] College of Public Health, East Tennessee State University, Johnson City, TN, USA
Correspondence: [*] Corresponding author: Kiana Johnson, Quillen College of Medicine, Department of Pediatrics, P.O. Box 70578, Johnson City, TN 37604, USA. Tel.: +1 423 439 6767; E-mail: [email protected].
Abstract: PURPOSE: The purpose of this study is to report preliminary evidence to support a new condition-specific measure of transition readiness that is theoretically grounded in the Stages of Changes framework. The Transition Readiness Assessment Questionnaire-Spina Bifida (TRAQ-SB) supplement is a newly developed tool used to measure independence and skill acquisition related to spina bifida. Similar to the Transition Readiness Assessment Questionnaire (TRAQ), the TRAQ-SB uses a 5-point Likert response set. METHODS: Working with a multi-disciplinary team with expertise in the care of children with spina bifida, the authors developed twelve items pertaining to main aspects of SB self-management. The items were reviewed and revised through several iterations by the team and patients. The items were then fielded at a spina bifida Specialty Clinic, where 93 consecutive patients 12–25 years of age were approached to participate and 90 were administered the 20-item TRAQ and a 12-item TRAQ-SB questionnaire. A principal component analysis (PCA) was conducted on the twelve items with oblique rotation (promax). Criterion validity was also assessed by examining the correlation of the TRAQ-SB supplement with the TRAQ and with age. RESULTS: Results of the factor analysis revealed that eleven of the twelve items loaded onto one factor with factor loadings ranging from 0.46 to 0.84. The scale yielded excellent internal reliability with a Cronbach alpha of 0.90. Correlations of the TRAQ-SB supplement scale score with the TRAQ overall scale score demonstrated good criterion validity (r= 0.74, p< 0.01). In addition, it was highly correlated with the TRAQ subscales, varying from 0.68 to 0.74 (all p< 0.01). Lastly, the TRAQ-SB was significantly correlated with age (r= 0.25, p< 0.01). CONCLUSIONS: Results of our analyses indicated that the TRAQ-SB demonstrated good internal reliability and criterion validity as evidenced by strong correlation with age and the validated TRAQ measure. The TRAQ-SB tool can be useful to incorporate transition readiness assessment and self-management training into routine care for adolescents with spina bifida.
Keywords: Health care transition, transition readiness, spina bifida, self-management, urinary incontinence
Journal: Journal of Pediatric Rehabilitation Medicine, vol. 12, no. 4, pp. 415-422, 2019
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