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Issue title: Cerebral Palsy
Guest editors: Michael M. Green and Deborah Gaebler-Spira
Article type: Research Article
Authors: Sellers, Dianea; * | Bryant, Elizabetha; b | Hunter, Alisona | Campbell, Viviennea | Morris, Christopherc
Affiliations: [a] Chailey Clinical Services, Sussex Community NHS Foundation Trust, Brighton, East Sussex, UK | [b] School of Health Sciences, University of Brighton, Brighton, East Sussex, UK | [c] College of Medicine and Health, University of Exeter, Exeter, Devon, UK
Correspondence: [*] Corresponding author: Diane Sellers, Chailey Clinical Services, Beggars Wood Road, North Chailey, East Sussex, BN8 4JN, UK. Tel.: +44 1825 722112; E-mail: [email protected].
Abstract: AIM: This study evaluated the inter-observer reliability and stability over time of the Eating and Drinking Ability Classification System (EDACS) for children and young people with cerebral palsy (CP). METHOD: Case records for 97 children with CP were examined to collect retrospective data about eating and drinking abilities at four time-points with a minimum of 2 years between each time-point. Sex, Gross Motor Function Classification System (GMFCS) level, presence of feeding tube and orthopaedic issues were recorded from case records. One speech and language therapist (SaLT1) classified eating and drinking ability using EDACS for all cases at all time-points; SaLT2 assigned EDACS levels for 50 cases at time-point 1; SaLT3 assigned EDACS levels for 24 cases at all time-points. Inter-observer reliability and stability over time were assessed using the Intraclass Correlation Coefficient (ICC). Associations between EDACS levels and functioning recorded with other Functional Classification Systems (FCSs) were calculated using Kendall’s tau (τ). RESULTS: Out of 97 children, 48 were male, 48 had feeding tubes, and 83 had orthopaedic issues. ICC for EDACS levels recorded by SaLT1 across all time-points was 0.97 (95% CI 0.96–0.98); changes in EDACS levels occurred infrequently and never by more than one level. ICC between SaLT1 and SaLT2 at time-point 1 was 0.8 (95% CI 0.67–0.89); ICC between SaLT1 and SaLT3 across all time-points was 0.95 (95% CI 0.92–0.98). Association between GMFCS and EDACS was moderate (τ= 0.58). INTERPRETATION: Retrospective use of EDACS to classify children’s eating and drinking abilities appears reliable; EDACS appeared stable over 6 or more years in 86% of the cases.
Keywords: Cerebral palsy, eating, drinking, EDACS, lifecourse
DOI: 10.3233/PRM-180581
Journal: Journal of Pediatric Rehabilitation Medicine, vol. 12, no. 2, pp. 123-131, 2019
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