Affiliations: [a] Department of Nursing Research, Children’s Hospital of Wisconsin, Milwaukee, WI, USA | [b] Self-Management Science Center, College of Nursing, University of Wisconsin-Milwaukee, Milwaukee, WI, USA | [c] Department of Neurology, Division of Neuropsychology, Medical College of Wisconsin, Milwaukee, WI, USA | [d] College of Health Sciences, University of Wisconsin-Milwaukee, Milwaukee, WI, USA | [e] Department of Pediatrics, Division of Developmental Medicine, Seattle Children’s Hospital and University of Washington School of Medicine, Seattle, WA, USA
Correspondence:
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Corresponding author: Kathleen J. Sawin, Department of Nursing Research, Children’s Hospital of Wisconsin, Box 1997 MS C140, Milwaukee, WI 53201, USA. Tel.: +1 414 337 0623; E-mail: [email protected].
Abstract: PURPOSE: Measuring self-management behaviors in adolescents and young adults with chronic health conditions has become a priority in health care, yet there is a paucity of instruments that capture these behaviors. The purpose of this psychometric study was to evaluate the reliability and validity of the 17-item generic Adolescent/Young Adult Self-Management and Independence Scale II (AMIS II). METHOD: Data were collected from 201 adolescents/young adults (AYA) with spina bifida and 129 of their parents. Exploratory factor analysis, confirmatory factor analysis, Cronbach alpha, frequencies, Pearson correlations, and intraclass correlations were used to evaluate the data. RESULTS: The exploratory factor analysis of parent data supported two related self-management factors (Condition Self-Management and Independent Living Self-Management). Confirmatory factor analysis of AYA data confirmed these two factors and an overall scale with good fit statistics (GFI and CFI = 0.86–0.95; RMSEA = 0.057). Internal reliabilities ranged from α= 0.72–0.89. Intraclass correlation analysis supported the stability of the instrument (ICC parent report = 0.82, AYA report = 0.84). Concurrent validity was supported with low to moderate correlations to six related but distinct variables. CONCLUSION: Psychometric analysis supports this expanded measure of self-management for AYA with spina bifida. Evaluation of this instrument in AYA with other chronic health conditions is underway.
Keywords: Adolescents, self-management, young adults, independent living behaviors, chronic health conditions
