Chicago Medical School, Rosalind Franklin University of Medicine & Science, North Chicago, IL, USA
Center for Health + Technology, University of Rochester Medical Center, Rochester, NY, USA
| [c] Simone Consulting Services, Silicon Valley, CA, USA
Correspondence to: Jessica Francis, PhD, University of Rochester Medical Center, 265 Crittenden Blvd, CU 420694, Rochester, NY 14642, USA. Tel.: +1 585 276 3280; Fax: +1 585 461 3554; [email protected].
Abstract: Background:Telemedicine is increasingly used for Parkinson disease, but the perspectives of persons with Parkinson disease have not been systematically assessed. Methods:We therefore conducted a national online survey, and 781 individuals with Parkinson disease responded. Results:Of these, 76% indicated high interest, and 29% reported prior telemedicine experience. The top advantages included access to specialists (62%), convenience (60%), and time savings (59%). The most common disadvantages were the lack of hands-on care (69%), lack of intimacy (43%), and technical difficulties (37%). Conclusions:In this non-representative sample, interest in telemedicine was high but tempered by the concern for loss of high touch care.
Keywords: Movement disorders, Parkinson disease, telehealth, telemedicine