The Search for Pompe Patients in Canada: Assessing Feasibility of a National Disease Registry to Facilitate Research

Issue title: Abstracts from the 7th European Symposium on Steps Forward in Pompe Disease: Turin, Italy, November 21–22, 2014

Article type: Research Article

Authors: Korngut, Lawrence | Johnston, Megan | Campbell, Craig | Genge, Angela | MacKenzie, Alex | McCormick, Anna | Venance, Shannon

Affiliations: Department of Clinical Neurosciences, University of Calgary Hotchkiss Brain Institute, Calgary, Canada | Department of Pediatrics and Clinical Neurological Sciences, Western University, London, ON, Canada | Clinical Research Unit, Montreal Neurological Institute, Montreal, QC, Canada | Department of Pediatrics, Children's Hospital of Eastern Ontario Research Institute, University of Ottawa, Ottawa, ON, Canada | Department of Physical Medicine and Rehabilitation, Children's Hospital of Eastern Ontario, University of Ottawa, Ottawa, ON, Canada | Department of Clinical Neurological Sciences, Western University, London, ON, Canada

Note: [] Correspondence to: Lawrence Korngut, Department of Clinical Neurosciences, University of Calgary Hotchkiss Brain Institute, Calgary T2N 1N4, Canada. E-mail: [email protected]

DOI: 10.3233/JND-159041

Journal: Journal of Neuromuscular Diseases, vol. 2, no. s1, pp. S45-S46, 2015