Zebras in the workplace: Vocational rehabilitation considerations for individuals with Ehlers-Danlos Syndrome

Issue title: The Nature and Needs of Americans with Emerging Disabilities

Guest editors: Lynn C. Koch and Phillip D. Rumrill

Article type: Research Article

Authors: Hill, Julie C.

Affiliations: Department of Rehabilitation, Human Resources and Communication Disorders, University of Arkansas, Fayetteville, AR 72701, USA. Tel.: +1 970 691 1816; Fax: +1 479 575 3319; E-mail: [email protected]

Abstract: BACKGROUND:In this article, readers are introduced to a rare disorder, Ehlers-Danlos Syndrome (EDS), an emerging disability that can substantially impair vocational functioning. OBJECTIVE:An overview of EDS and information about common co-occurring conditions are provided. CONCLUSION:Vocational implications of EDS are discussed, including functional limitations and recommended job accommodations. Strategies for illness self-management are explained, as well as potential interventions to improve career self-efficacy. Additional services to include in VR plans (e.g., peer supports, job development and placement services) are also examined.

Keywords: Ehlers-Danlos Syndrome, EDS, vocational rehabilitation, employment

DOI: 10.3233/JVR-170895

Journal: Journal of Vocational Rehabilitation, vol. 47, no. 2, pp. 197-206, 2017